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Friday, 28 August 2009

  • 1 year with Leukemia

    Tomorrow marks a year of Tim’s being diagnosed with leukemia. Some may think it is rather morbid of me to remember this anniversary, but that’s me I guess. On your wedding anniversary, do you sit around and ask your spouse, what were we doing at this time ___ years ago? We do, and it’s a rather fun tradition to keep those memories alive, I think.

     IMG_0777 IMG_0764

    But, this time last year, I was trying to navigate my way around St. Luke’s top floor for the first time, wondering why with a hematology problem Tim was placed on the oncology floor, while pushing my 5 week old around in a stroller. I watched the elderly people with no hair push their trolleys around, and wondered to myself what I was doing there. I sat in my bruised husband’s room trying to wrap my mind around the idea that no one knew what was wrong with him. I was partially convinced if I stayed by his side though, that he wouldn’t die, like I had some sort of super powers or something.
    I remember running through all those verses I’d memorized and all those truths about God that I’d learned in all the years of my life as a Christian, and realizing that this was really where the rubber was meeting the road for me. Sure, I’d had trials before, but there was nothing in my 25 years that could compare to the threat of becoming a widow with a newborn, and losing the man that I love so much. I don’t think all the tears in my life combined could add up to the amount that I shed during those first couple of worrisome days; tears of fear and worry, and tears of pleading before my Lord. I was searching for answers.

    The waiting was the worst of it, because I love to be informed. Information has been my sword to fight off fear in my life, but this time information itself wasn’t even enough. The Lord had to be enough for me. I’ve heard people say that God is enough. What a simple statement, and yet in this time it proved so difficult for me to believe that. It was the only solution to all the questions I'd been asking: what if Tim dies before they find out what's wrong? What if he lives with this for a long time? What if he can't work again? What if I become a widow? What if they can't do anything about this? Before, God was mostly enough, and my husband was the rest. I didn’t realize that, until he got sick. I didn't realize what a dangerous place that put me in.
    The Lord didn’t call me to have to put that lesson to the ultimate test. As you all know, Tim is alive and well, and continues to be the best husband that I could ask for. And yet, the Lord still has to be enough for me, even though I forget it from day to day.
    When we see the bills coming in, and wonder why leukemia has to be so expensive, we have to remember that the Lord is enough, and that money is just money… it stays here, when we move on. When we see hair falling out, we have to remember that the Lord is enough… hair is just hair, and Tim didn’t have that much of it anyways. When we begin to lose our faith, and wonder about the future, about recurrence of the leukemia, or seeing one of our boys develop the condition one day, we have to remember the Lord is enough… He brought us through before, and He will be the one to bring us through again.
    So, I remember the anniversary to remind myself that I am not enough. No amount of information can cure fear, because it comes from a heart that is not trusting God, one that wants to be able to solve all its own problems. God has to be enough for me, in every day, in every situation, and in every problem.

    Rejoice with me today. He sent Jesus to die, so that we would look to Him to save us, and not to ourselves. He provided what we desperately needed but had no power to accomplish. He is enough. IMG_2251 IMG_2283 IMG_2374 IMG_2371

Thursday, 16 July 2009

  • Quick Update

    Just a quick update...
    For those of you who followed my posts while Tim was in the hospital, there is an update to mention on Mike, the guy Tim met while he was at St. Luke's.
    Mike had lymphoma, and had been doing really well. In fact, the doctors were calling it miraculous that he was able to come back from having had it as badly as he did. Tim talked to him last night on the phone, and he has relapsed. It doesn't sound like it has come back nearly as badly as he had it the time before, but he will have to have some more rounds of chemo, and then will be undergoing a very serious stem cell transplant (similar to a bone marrow transplant). It will mean a lot of time in the hospital, which will unfortunately be in Madison, not Milwaukee. It will also mean a extremely nonexistent immune system.
    Please remember Mike in your prayers, and plead with us that God would use this to draw Mike to Himself.

Tuesday, 07 July 2009

  • New Stuff

    Well, it's been forever again. It's really not my fault this time. I like xanga better than Facebook, but because I can talk to about 80 times the amount of people on Facebook, I spend more time there. Pathetic, giving in to to peer pressure like that, I know, but what can I do? It's also due to the fact that summer is finally here, and we don't spend nearly the time indoors that we did a couple of months ago...

    IMG_1933
    A couple of weeks ago, we took a trip to the Zoo, for the first time with Ben. We got free tickets because Tim is a cancer-survivor, and it was Cancer Survivor Day. Isn't that a weird thing to be at 28? Whatever, free tickets are free, and free is always good. There were a ton of people at the Zoo, walking for the Lombardi Cancer Clinic, and a lot of them had on shirts saying who they were walking in memory of. At first, I wanted to turn around and walk out of the zoo. Seeing that opened up a raw wound, that I didn't realize was still there. What if I was there walking in memory of Tim, instead of next to him? I am so extremely blessed, to still have him here with me day in and day out, and in good health to boot. 

     IMG_2074
    Life moves along so quickly sometimes, that I forget what this last year has brought us. Ben will be a year old in about 2 weeks, and then 5 weeks after that it will be a year since Tim was diagnosed with leukemia. Needless to say, I spent a day rejoicing to walk next to him, and to see him holding our boy. The Lord didn't have to choose to spare Tim's life, but he did, and I am thankful.

     IMG_2019 IMG_2079
    So, enough of that...
    Ben is trying really hard to walk, and goes everywhere with his walker. He stands alone, when he doesn't realize what he's doing, but falls down as soon as he does. Hopefully he'll be up and going in the next couple of weeks. My belly isn't huge yet, but, it's getting more and more in the way of carrying him. I'm looking forward to him walking for that reason, even if it will mean more chasing him!

    IMG_2095
    For Father's Day, we made imprints of Ben's hands and feet. Don't ask me how many tries it took me to just get to the plaster with his paws before it dried! When we finally did, I realized that Ben thought the plaster looked yummy, and that he should eat it. For that reason, I am not posting a picture of the hand mold. It looks like he has a couple of extra fingers on each hand, and one hand looks more like a claw, because he didn't press his hand down flat he tried to grab the plaster instead. The feet turned out cute though, and Ben put on his fake smile for the occasion. :)
    Other than that, we've been swimming, playing outside, and learning how to make animal noises. Ben wakes up in the morning, chirping like the little bird that he is...
    IMG_2129
    Enjoy your summer!

Monday, 01 June 2009

  • Wonder of Wonders, Miracle of Miracles!

    I always loved this song from Fiddler on the Roof, and I would say that I definitely believe that miracles happen. Not many have happened in my life, but I gladly have one to report to you all today.
    Maybe you remember the whole leukemia thing. Well, there was one thing about it that we didn’t really share with everyone. When the Dr.’s assistant came in to tell us what was going on Friday afternoon (when we didn’t yet have a diagnosis) she proceeded as follows: “Hi. I am so and so’s assistant. We are now about 99% sure that you have an acute form of leukemia. We need to confirm this with the results of the bone marrow biopsy still, but are confident that this is what is wrong. We need to start you on chemo therapy as soon as possible. The chemo therapy that you will be on is known to cause men to become sterile. Would you like to donate sperm for future use?”

    What a lovely way to find out that your husband has leukemia. Not only do we think he has this terrible disease that no one I know has ever had, but we probably will never have any more kids. When I asked our Dr. later in the day for a percentage, she said, “I’m not sure, but it is slim to none. It is highly unlikely that he will ever naturally conceive children again.”

    Lovely, then I just wanted to know a percentage, and everyone was too afraid to give it to me. I did some research on the internet, but since the drugs he would be on are rarely used (because of how rare his form of leukemia was) there wasn’t anything helpful out there, except what they already told me. Obviously, at that point I was not sure that my husband would survive treatment, let alone survive and be well enough again someday to figure out whether he was sterile or not; but the weight of that burden to carry on top of everything else felt like too much most days.
    At that point Ben was 5 weeks old, and I remember struggling every day trying to remember everything that he did, wondering if it would be the last time I saw a baby of mine do that. We always wanted a bigger family, and one child didn’t really seem like big. The Lord was gracious enough to intervene, and with much surrendering, and fighting worry, He gave me a peace about being wherever he put us, through cancer, through infertility, or becoming a widow. Come what may, but the Lord would still be with me.

    Fast forward 9 months and you meet me here today, a pregnant woman yet again. No one knew what the future held for us, but our God knew, and He chose to give us answers on the leukemia thing pretty fast. Tim has been in remission for almost 6 months, and is feeling great. He chose to give us answers on the infertility too. We didn’t think those answers would come so soon, but they did. Baby 2 Profile
    When Tim told his Dr. that I was pregnant, she freaked out. When I told my Dr. I was pregnant, she freaked out too. They both were concerned about the effects of the myriad of drugs Tim was on, and whether or not the baby would be normal. They all talked about the special monitoring and special tests that we should do, just to make sure that everything was normal. The answer was always, and will always be no. This baby has been our miracle from conception and for us that meant whether it survived to be born or not. But, here God was giving us another opportunity to put our faith in Him and what He has for us, instead of worrying about what might be, a very easy thing to do.
    Today I had my 12 week ultrasound, and the baby looked completely normal, and healthy. Everything that they can check with a standard ultrasound, they checked, and it all looked perfect. It was a moment of great joy, rejoicing, and relief, to know that things were headed in the right direction. The baby is due December 12th.

    So, here we are not even a year post-leukemia, telling you that miracles happen, and that God has been gracious in giving us another amazing gift. I hope that this story gives you something to rejoice about today, and helps you to remember that this verse is really true: “Now to Him who is able to do exceedingly abundantly above all that we are able or think, according to the power that works in us, to Him be the glory… forever and ever. Amen.” Eph. 3:20-21

    Baby 2s Hand
    This is a picture of the top of its head and hands. You can see all the fingers on the one hand from this perspective.

Wednesday, 20 May 2009

  • A Mover

    Okay. So I finally have a minute to sit down and write about the latest around here.
    Ben is everywhere all at once. We are discovering just how many adult things we have lying all over the house. I am realizing just how dirty the kitchen floor can get even though I swear I just washed it. And, Ben is full of bruises, because he is refuses to be any type of cautious. Yikes.
    He started really crawling well about last Tuesday or so. He now does not stop. On Sunday, we went into his room to get him up in the morning, and he was standing there. He had pulled himself up in the crib. Now everything from the TV stand, to the package of water bottles sitting in the hallway, are tools to aide him in standing on his own. He even transferred from one thing to the other today, and stood alone for a couple of seconds.
    IMG_1879
    Obviously, he had been standing there for a while, and didn't know how to get down. When I walked out of the room to get the camera, he started crying, like, hey get me down! He didn't even pose his usual cheese face for the picture, because he was freaked out. Now he just falls over from wherever he's standing when he wants to get down, and rarely cries about it.
    How did all of this happen in a matter of days? I know he was more than ready, and had been working on it for a while, but I mean come on! My life has taken a major turn. I now have to chase him around the house, declaring which things he is allowed to touch and which not. If you have kids, you know what a "fun" time this is. I can't take my eyes off of him for a second, unless he is in something, or napping, so that he is immobilized. IMG_1823
    Of course, it is amazing to watch this little baby that was born helpless just 10 months ago (tomorrow), transform into a fully mobile and adventurous little boy. He's already figuring out how to walk on the furniture, and my little content boy will not be content to crawl for very long, I think.
    So, that is what's new.
    We went to meet the newest friend for Ben who was born May 7th. Eric and Tash had little Ariel Helena last two weeks ago, and she is an absolute angel. She couldn't open her eyes for the picture though!
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    When Tash goes back to work Ariel is going to come over here for a couple of days a week. Ben is looking forward to having a friend around!
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    These are just a couple of extra shots of the haircut.
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    Ben wants to follow in Uncle Alex's footsteps and become a pianist. He sure loves to make any type of noise.
    Until next time...

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brittKD

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    • Name: brittKD
    • Birthday: 4/30/1983
    • Gender: Female
    • Member Since: 12/26/2007

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  • Living everyday by the grace of God alone.

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Chatboard (4)

  • brittKD
    @huntingmomof5 - I can't wait too! It will be so nice to have someone here to talk to and be with when I can't be at the hospital. Tim will really enjoy you visiting again. Give Brian a huge hug for me, and tell him that he has no idea how big of a blessing he is giving me by sending you here. See
    • Posted 9/4/2008 6:27 PM
    • by brittKD
  • huntingmomof5
    Thanks for posting all the great pictures! Ben is absolutely beautiful! Daddy looks like a real, live superhero complete with cape and mask and you Sister Dear are a wonderful wife and Mom. I'm praying for you daily (non-stop) and look forward to keeping up to date here! Love, Trish
  • brittKD
    @JSchanbeck - You guys should send me your e-mail addresses so that we can talk that way. I hate having to relay any and all info through my mom- not that she really minds!) We looked at my baby pics and I was born with about as much brown hair. Where the black comes from, no one knows! He sure is
    • Posted 7/30/2008 4:38 PM
    • by brittKD
  • JSchanbeck
    Thanks for posting your pictures! Janelle and I (Sandy) loved them!! We can't believe all that hair, where does he get that from? How exciting for you to finally have him at home with you. We hope you are enjoying him. Post more pictures so we can see him again! :) Janelle has signed up for yo